Consent and Participant Information Guidance

Resources

Please find below some useful resources:

Select the headings below to find out more:

Accessing ONS, NRS and other registry data

Adults who are not able to consent for themselves

UK WIDE

ENGLAND AND WALES

NORTHERN IRELAND

SCOTLAND

Children and Young People

Data and Tissues (including Generic Consent)

Deceased

Deception as part of the research method

eConsent: seeking consent by electronic methods

Ethical Principles

Examples of providing information using different formats

Expenses and Payments

Good Clinical Practice

Health Related Findings

Involving patients and the public

Ionising Radiation

Pragmatic trials

Risks and benefits

Therapeutic studies - what happens when the research study stops

UK wide standards for informing participants

Writing in plain English / readability